logo blue

Monika Haider, Director of equalizent in Vienna (AT)

Austria

 

Video in spoken English, with English subtitles.
The interview below is different from the video.

You are the Director of equalizent. How did you become interested in Deaf History, Deaf Culture?

Before I founded equalizent, I worked for five years in the biggest school for the deaf in Austria.

After that, I was politically active and negotiated school laws as head of an association. The goal of the association was to enable the joint education of children with and without disabilities. 

I saw some shocking abuses there. Examples of how sign language was suppressed and even banned. I also saw how important this language is for deaf people.

That was the motivation to found equalizent, in order to enable deaf people the right to sign language at least in the educational field. And the more I dealt with the topic, the more I was captivated by it. 

And then, of course, it is no longer about the current situation, but also about how it came to be that sign language was banned. Why do deaf people often refer to themselves not as people with disabilities, but rather as a language community or culture?

I have often signed with deaf people about these exciting questions, I have read books and discussed with experts. And you never stop learning. New information and new aspects are constantly being added.

When did you decide to build the Hands Up exhibition? How long did it take?

I had the idea for this many years ago. In our work, we noticed how little society knows about deafness and sign language.

Therefore, we developed an awareness-raising training package. It included aspects of communication, history, as well as peculiarities of the deaf community.

We expanded our training, adding digital tools. In this way, everything grew into an exhibition to provide information, but above all, to put experience at the forefront.

It took us five months to set it up. It was more difficult to find the funding. That took years. 
(see below for a video about the Hands Up exhibition.)

A short Video about the Hands Up exhibition:

Why did you decide to do this, what was your motivation? 
What was your starting point?
What materials, expertise, skills did you have, and who helped you?

I've always seen that there is a huge gap between hearing and deaf people. These are parallel worlds that know little about each other and that is a shame!

Hearing people are often reluctant to approach deaf people because they don't know how to communicate with them. Deaf people are usually very open and inventive anyway. But this first step is the crux of the matter.

This exhibition, with deaf guides lead, marks the first important step: the visitors notice that communication is possible, that it is fun. You also learn a lot of interesting details about deafness. For some, this is the beginning of a sign language "career". They are so enthusiastic about the language that they take a course with us.

This is a great added bonus for us! It used to be assumed that the deaf should simply read lips. The more people attend sign language course, the more people truly understand that the tables have turned: hearing people need to take the step towards deaf people and not the other way around. Inclusion needs mutual effort and approach.

What were the major challenges? How did you deal with these?

The biggest challenge is certainly financial. Since the beginning of the pandemic, this has become even more acute as the exhibition has been closed for many months. Of course, the guides are still being paid.

Therefore, we have developed a concept to bring the exhibition to the people. It can be displayed outdoors or in companies, at schools for example. HANDS UP on tour is our 2nd – flexible - exhibition.

How was the deaf community involved? What was their reaction? To your plans, to the finished exhibition?

According to the motto "nothing about us without us", deaf employees of equalizent were involved in the construction of the exhibition from the beginning.

A mixed team of hearing and deaf people enabled us to integrate all points of view. On the one hand, it was important to us that deaf people have a say in what is communicated about them.

On the other hand, in an exhibition aimed at a hearing audience, it is also crucial that the knowledge of hearing people is included.

After the opening of the exhibition, we also deliberately invited the deaf community for guided tours to learn from their feedback and to further improve the exhibition. The feedback was extremely positive. 

We succeeded in getting deaf visitors to identify with the content of the exhibition. For the community, it is certainly a great thing that their culture, their language and their history finally gets a public space.

Who is your main target group, who do you want to visit your exhibition / museum? 
Deaf or hearing people, people from your country or also international visitors? Children, young people, families, adults?
How do you meet their specific needs, expectations, preferences?

The exhibition is primarily aimed at hearing people. Most visitors come from Austria. Individuals, families, school classes come. Companies have also already booked the exhibition for company outings.

Since many digital and playful elements are integrated, everyone can take something away with them.

Our guides are also flexible enough to adapt the tour to the visitors. For example, when it comes to teaching individual signs, they tend to show children the signs of animals; for adults, signs from social life, work, and leisure are more interesting.

The texts on the walls are also in English, so that tourists or people with a migration background can also visit the exhibition. We will also pay more attention to this after the end of the pandemic.

In addition, we have used the time in home office during the Corona restrictions to develop focus topics, such as LGBTIQ and deafness. We hope that in the future people will come to the exhibition not only once, but also for special topics.

How did you decide what to include in your exhibition / museum? And: how to display them?

It was important for us to focus on interaction, in addition to tangible information such as timelines about important events in the history of the deaf, about famous deaf personalities, etc.

Our deaf guides are the heart and soul of the exhibition. With a lot of charisma, they approach the visitors, take away fear of contact and show how interesting their world actually is.

We also wanted to create an exhibition that is modern and digitally playful. We therefore included a digital sign language quiz, for example, in which visitors can try out for themselves which signs they already know.

You can try to read lips yourself with and will be surprised that this is quite difficult.

A highlight is certainly the sign language karaoke. On a vibration platform, hearing people can feel how different types of music feel to the deaf. They have the opportunity to try out musical gestures themselves as well.

Did you do any market research before you started?
If not: why not?
If you did: How, and what were the results? 

We researched in several countries, had contact with the operators of the deaf exhibition "Dialogue of Silence" in Hamburg and Tel Aviv and with the licensors of the worldwide blind exhibition "Dialogue in the Dark". We conceived our exhibition as a cooperation project with the Viennese "Dialogue in the Dark”.

How do you advertise your exhibition? Do you use social media, if yes: how?

We did active presswork at the start of the exhibition. The media showed great interest, so we were able to attract attention right away.

Otherwise, we manage various social media channels, where we want to reach new visitors on the one hand, but also keep former visitors informed with postings about the topic of deafness and sign language as well as with news from the deaf community.

We have written directly to schools to draw attention to our exhibition and any special offers.

Do you keep check of the number of visitors, enquire about their background, how they found out about your exhibition/museum?

Feedback is very important to us. Especially in the early days, we invited students and pupils for a month and gathered their feedback in a structured way in order to adapt the exhibition or guide content.  Only then did we open the exhibition to the general public.  

Since then, we have been distributing short feedback forms at regular intervals.

Some data cannot be collected so easily for data protection reasons. But of course we also wanted to know how people found out about our exhibition. After all, that helps in the planning of advertising measures.

How was / is your exhibition financed?

We have received public start-up funding to set up the exhibition and later to get it up and running. With this, we received financial support for 1.5 years.

After this phase, however, we had to stand on our own two feet and now we finance ourselves exclusively through ticket sales.

How has the Covid-19 crisis and shutdowns affected your exhibition ?
What are your plans for the future? Short-term & long-term?

We are now increasingly relying on "HANDS UP on tour". This means that school classes and companies no longer have to come to us, but we come to them. In this way, other federal states can also benefit from our exhibition. An exhibition tour abroad is also quite conceivable.

To motivate visitors to come more often, we are developing focus topics, like LGBTIQ and deafness, or e.g. linguistic minorities and sign language, racism, deaf people in the time of National Socialism, deaf women, etc.

The knowledge from the first visit can thus be deepened in many directions, resulting in a more comprehensive, differentiated picture of the world of deaf people.

by Liesbeth Pyfers, Pragma - NL, 24 March 2021

handsup To the Hands Up website

Quotes:

  • “One story makes you weak. But as soon as we have one-hundred stories, you will be strong.”
    Chris Cleave in "Little Bee", 2008
  • "After all, we are all of us explorers, and we all have much to bring to each other from our own
    journeyings."
    Ladd, P. (2003). Understanding Deaf Culture: In Search of Deafhood.
  • "And yet, even within a large and, in many ways, traditional organization such as this (Trøndelag Folk Museum, Norway), the museum's encounter with Deaf culture contributed to profound changes and a process, still underway, which challenges our own understanding of what a museum is today, our role in society and our obligations towards more diverse audiences than those we had previously engaged or even recognized."
    Hanna Mellemsether, in:  Re-presenting Disability: Activism and Agency in the Museum, 2013
  • "Nina Simon has described true inclusion in a museum context as occurring when museums value the diversity in their audience, value those individuals’ potential and contributions, when they actively link those diverse people across differences, and when the organisation reaches out with generosity and curiosity at the core.
    On a practical level this sort of museum practice would see widespread inclusion of people with disabilities in the planning of museum exhibitions, on museum boards and steering committees, and working in curatorial roles."
    In: Corinne Ball: Expressing Ourselves, 2020
  • "Histories have for too long emphasized the controversies over communication methods and the accomplishments of hearing people in the education of deaf students, with inadequate attention paid to those deaf individuals who created communication bridges and distinguished themselves as change agents in their respective field of endeavour."
    from: Harry G. Lang, Bonny Meath-Lang: Deaf Persons in the Arts and Sciences, 1995
  • "Until the fall semester of 1986, the history department at Gallaudet University had never before offered a course in the history of deaf people.
    In the 122 years, to that point, since the founding of the university, which was specifically intended for the education of deaf peoples, no one had ever taught a course about this very group of people.
    In all of those years the history department had offered courses on a wide range of topics but never deaf history. "
    ENNIS, WILLIAM T., et al. “A Conversation: Looking Back on 25 Years of A Place of Their Own.” Sign Language Studies, vol. 17, no. 1, 2016, pp. 26–41. 
  • "Access to and participation in culture is a basic human right. Everyone has a right to representation and agency in museums, and communities should have the power to decide how they engage."
    Source: A manifesto for museum learning and engagement
  • "Beyond works of art and objects, museums collect shared heritage, memories and living cultures as well as what we call intangible collectables."
    Source: We are Museums
  • "The Finnish Museum of the Deaf) was founded by deaf people, and, thus, its task has been to strengthen their identity and historical communality.

    Most of our materials have a connection to the key experiences that generations of deaf people have shared. These are important in understanding the past and keeping the collective memory alive."
    In: TIINA NAUKKARINEN, Finnish Museum of the Deaf: Presenting the Life of Carl Oscar Malm (1826–1863)
  • "It was only during the past decade that recognition of the importance of preserving Deaf history has emerged. In the main, Deaf heritage, culture and folklore has been passed down from generation to generation via the medium of sign language and fingerspelling. (..) It is also vital that the history of Deaf people is made available to future generations, especially Deaf schoolchildren as part of their history lessons."
    A. Murray Holmes,  in: Cruel Legacy, an introduction of Deaf people in history, by A.F. Dimmock, 1993
  • "Museums can increase our sense of wellbeing, help us feel proud of where we have come from, and inspire, challenge and stimulate us."
    Source: Museums Change Lives
  • "Deaf mute, deaf and dumb, hearing impaired – the choices are many and not without consequences. Words have many meanings, they convey attitudes and prejudices and may hurt, even when used in a well-intended context."
    Hanna Mellemsether, in:  Re-presenting Disability: Activism and Agency in the Museum, 2013
  • "Museums can increase our sense of wellbeing, help us feel proud of where we have come from, and inspire, challenge and stimulate us."
    Source: https://www.museumsassociation.org/campaigns/museums-change-lives/
  • “Stories of disability are largely absent from museum displays. Where they appear, they often reflect deeply entrenched, negative attitudes towards physical and mental difference. Research reveals that museums don’t simply reflect attitudes; they are active in shaping conversations about difference.
    Projects created with disabled people show that museums hold enormous potential to shape more progressive, accurate and respectful ways of understanding human diversity. Why wouldn’t we take up this opportunity? ”
    Richard Sandell, co-director, Research Centre for Museums and Galleries, University of Leicester
  • the past can hurt

    From: Walt Disney, The Lion King

  • "Deaf people have always had a sense of their history as it was being passed down in stories told by generations of students walking in the hallways of their residential schools and by others who congregated in their clubs, ran associations, attended religious services, and played in sporting events.
    With these activities, the deaf community exhibited hallmarks of agency — an effort to maintain their social, cultural, and political autonomy amid intense pressure to conform as hearing, speaking people."
    BRIAN H. GREENWALD AND JOSEPH J. MURRAY, in: Sign Language Studies, Volume 17, Number 1, Fall 2016
  • "Opening ourselves to the Deaf community, listening to and respecting them as co-creators and experts telling the stories they want told, makes our practice richer, and has ongoing positive effects for the community.
    These embryonic relationships hopefully encourage Deaf people to feel welcome in our space — it’s their space too.
    For both side, communities and museum professionals, while genuinely, openly and truly committing to working together can be time-consuming, it repays any investment many-fold."
    Corinne Ball: Expressing ourselves’: creating a Deaf exhibition", 2020
  • "The most significant function of museums is as centres for cultural democracy, where children and adults learn through practical experience that we all have cultural rights. Having the opportunity to create, and to give to others, may be one of our greatest sources of fulfilment. Culture is everywhere and is created by everyone."
    Source: A manifesto for museum learning and engagement
  • "Inclusion is moving from “we tolerate your presence” to “we WANT you here with us”.
    Jillian Enright in The Social Model of Disability, 2021
  • "An important matter for any minority group is that written documents in public archives are often drawn up by the majority group and do not always reflect a minority as it sees itself. Thus, preserving sign language narration is of the utmost importance and a challenge to those working in the field of Deaf history."
    In: TIINA NAUKKARINEN, Finnish Museum of the Deaf: Presenting the Life of Carl Oscar Malm (1826–1863)
  • "As recently as the 1970s, deaf history did not exist. There were available sketches of various hearing men, primarily teachers, who were credited with bringing knowledge and enlightenment to generations of deaf children, but deaf adults were absent."

    In: Preface to: "Deaf History Unvailed, Interpretations from the New Scholarship". John Vickrey van Cleve, editor
    Publisher: Gallaudet University Press, 1993
  • "The Deaf community is international. What binds Deaf people, despite their different national sign languages, is their shared visual communication, history, cultural activities, and the need for a Deaf “space” where people come together."

    from: The Cultural Model of Deafness
  • “If you do not know where you come from, then you don't know where you are, and if you don't know where you are, then you don't know where you're going. And if you don't know where you're going, you're probably going wrong.”
    Terry Pratchett, I Shall Wear Midnight
  • "This (Deaf) Museum is not intended as a casual show, to be seen once and forgotten. Its pretensions are nobler; it has a humanitarian aim. By its solid and tangible evidences, making history memorable and attractive by illustration, it serves a double purpose: to dispel ignorance and prejudice regarding the deaf, and to raise the victims of this prejudice and ignorance to their true level in society."
    The British Deaf Monthly, Vol. VI (p.265) 1897. In: Deaf Museums and Archival Centres, 2006
  • "The UN Declaration of Human Rights states that “Everyone has the right freely to participate in the cultural life of the community”. This is based on the principle that citizens are not just consumers of cultural capital created by others; we have agency and the right to contribute through culture to the wider good of society."
    Source: A manifesto for museum learning and engagement
  • "For many members of the Deaf community their shared history is both personal and social. Deaf people will have gone to the same school, in many cases boarding schools where most of their younger lives will have been spent together, and then met again at their Deaf clubs, Deaf social events, reunions and other more personal events.
    One of the first things a Deaf person will often ask on meeting, before asking your name, is what school or Deaf club you go to. Making this connection is an important part of any greeting, as it will then help an individual to understand what shared history or people in common you may have."
    from: The Cultural Model of Deafness
  • "What has become clear is that museums don’t just function as custodians of the past anymore; instead, they have embraced their responsibility towards the communities of the present: a responsibility to represent them, to speak to them, and to be open to dialogue with them."
    Tim Deakin, August 2021